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@randomchick 

Last reply

randomchick

Tysabri?

Hi all. I’ve been on and off Tysabri for about 7 years now, but this summer feel that it is not really helping to keep me stable anymore. I’ve tried lemtrada, ocrevus beta interferon fingolimod and copaxone. Out of them all only copaxone and Tysabri gave some stability. I think I have moved into spms and would love to hear suggestions from people as to what worked for you or even thoughts on what is best. I’m considering coming off meds completely because I’m at such a loss and getting really down with it all 🙁
London, United Kingdom
3
@NatalieL
@NatalieL
 

I’ve been on Tysabri for around 13 years now, just having a break for pregnancy. I’ve found it brilliant and has really reduced my relapsed. I think my MS has very gradually got worse, but this is expected due to how long I have the condition (over 15 years). I’m surprised you’ve been able to change treatments so regularly. Have you been on Tysabri for an extended period - you might find it is more beneficial if you stay on it for a while. I hope you find something that works for you 🤞

@MesutOzil
@MesutOzil
 

Ive been on for nearly two years The neurologist had advised me take the treatment after a change in the MRI scan. I did not want any change from copaxone/gltiramer acetate as I was noticing improvement with some symptoms at that time and thought it might affect it. Praise be to the Almighty, it did not and I am grateful. Please do read Professor George Jelinek a doctor from Australia 'overcoming multiple sclerosis'. Searching online about him and his book etc may help. He does give importance to diet. Not an advocate of meat and chicken. However, oily fish is quite essential as well as lots of fruit and vegetables. Fast food is a no no.....