Neurologist visit in January
Hi everybody, my name is paul and I live in the south of Spain. I got diagnosed with rrms in April this year. Spent two years having physio and back scans,thinking that the symptoms were caused by a back problem!
Eventually I was hospitalized in may, and put under a ms specialist. Ive lost strength in my left leg and can walk for twenty minutes, last ten dragging my foot. I am currently on betaferon, but what should I push for when I visit my neurologist?
Thanks for reading.
Sorry, forgot to mention, that the scans showed old lesions dating back over sixteen years. I just ignored the signs, because they would go, and I would just carry on as normal.
Hi @paulmorrison If you are will to take on the additional risks (you would be monitored closely) I would go for something stronger if you are already having mobility issues. I would research Techfidera, Tysabri and Lemtrada. Good luck! Spunky
Hi @paulmorrison and welcome. Here's a bit of reading for you:- https://support.mstrust.org.uk/file/store-pdfs/MS-Decisions-ALL.pdf As @spunky says above, the present things is to hit MS hard and fast with the strongest treatments. This will minimise future MS damage and optimise your outcome.
Hi there, well, living in southern Spain you're already one up on me! I only got diagnosed this year. No previous symptoms but the neuro did refer to one lesion as being 'old' which surprising to me. Yes, the nes @spunky mentions would seem a good starting point; are you eligible to get access in Spain? (At least until the dreaded Brexit) Sunlight and Vitamin D are great for MS although some people struggle with the heat. Are you working?Even though walking is a struggle, you should still keep exercising as often as you can, certainly swimming and walking are great. I can only manage 20 mins walking too, then it feels like I'm walking on the moon all of a sudden. My neuro told me to keep walking though. Welcome to Shift!
Hi @spunky , not much to lose, I am going to take the risk. Thanks for the advice.
[email protected] A lot to take in, but I think hitting it as hard as I can seems to be my best option. Thanks.
Hi there @vixen, I have lived in spain for twelve years and am a resident. I am covered under there nhs, so mo problems there. I haven't worked for the last six months as I have lost my balance as well as the strength in my left leg ( I am a builder) so this is a bit of an issue. I will keep up the walking and hope for the best, even if some time I look like I have drunk ten pints.
Hi @craigsreddie. Thanks for the advice, its good to know I am not on my own. Never done social media or even shared my thoughts and feelings, but desperate times.....
Jooly's Joint was good, I think it saved my sanity back in the day but not so much now sadly Take Care Sparky
Hiya Paul, I to live in Southern Spain, about 40 min drive away near Tabernas. We moved to Spain in 2015 because I had always been better in a warm dry climate. We have managed this year to buy a house and are settling in well. I have had SPMS since 1998_9 ???? ish. Not sure how they knew as only had 1 MRI scan in 1991 to help diagnosis. I have just had my second and am waiting to see neuro. I find the warm DRY climaste really helps me but wasnt prepared for winter to get so cold and am now having problems when I get cold. On the positive side of things i can do much more now than I could in the uk, I feel alive again for the first time for years. My advice is anything that helps you go for it, you may have to try more than 1 option though as we are all different.