CIS Diagnosis. Any advice?
Hi folks,
Well saw my neurologist yesterday who diagnosed CIS transverse mylitis. I am grateful to at least have some sort of diagnosis but feel totally overwhelmed and very low today...never slept at all last night. She has changed my drugs from pregabolin to duloxetine but no mention of a DMD. I never thought to ask yesterday. Just really looking for advice, I have ongoing symptoms of burning, very painful legs, electric shock like sensations intermittently all over my body and dizzyness.
Thanks everybody.
Kate x
@kateybash , Transverse Myelitis (TM) or CIS is another way of saying that you have "Singular Sclerosis", as you have only had one episode. It may, or may not, progress to me, dependent on whether you have another episode. The view of this condition (TM/CIS) is now changing and some proactive Neuros will prescribe a DMT, to avoid progression to MS. Have a read through this earlier post, which has some good links :- https://shift.ms/forums/topic/is-cis-a-type-of-ms
Hi @kateybash, sorry to hear you are so stressed ....waiting a diagnosis is grim but yours is not too bad. As @stumbler says, a DMT might be a good idea. And as @avrilt says, I also know someone who had TM who now has MS quite some years later, but she is far more mobile than I am and has just returned from a successful holiday in Puglia in Italy. So don't let it get to you.....and sleep well tonight😌Xx