@julz58 

Last reply

julz58

My story

I guess I've kinda been lucky in a way. I was diagnosed back in the bad old days of the 80s, when the only treatment for MS in Australia was cortisone injections. I hate needles with a passion and when first diagnosed spent a lot of time talking to my doctors and to other patients to see what was available and what I had to expect in front of me. I refused the cortisone injections for 2 reasons - one because I hate needles and two because everyone that I spoke to who had taken that course of treatment ended up in a wheelchair within 6 months of starting the treatment - I was 32 years old and a single mum with 2 kids - I did not want to be on wheels that quick! So I looked for other answers. I started eating healthier - nothing special - just fresh, everything I could lay my hands on. I limited the amount of processed foods I ate, stopped the intake of alcohol and anything else that I deemed to be detrimental to my well being. Over time, I moved around the country to different climates seeking answers in the weather patterns as someone had told me that different weather may affect me differently. I soon discover ed that a more temperate (on the cooler side) climate was better for me. Later still I moved to New Zealand - and since moving here, I have had even less active periods of the disease than I had anywhere else. Sure, when it is very wet, and very cold, it knocks me about, but on the whole I'm not doing too bad. But - get this - a year ago I had to go have a check-up MRI - the plaque that had been on my spinal cord near the top of my neck where it goes into the brain stem has disappeared altogether! It's gone! Nobody can explain how or why this might have happened. It was definitely there when I was first diagnosed, though. But now, well, a year ago, it wasn't. I'm almost tempted to go get another MRI done just to make sure. I have not taken any other kind of medication at all. My symptoms in the first place were weakness in my hands and arms; blurred vision and my legs would just fall out from under me for no apparent reason, and I suffered from horrible migraines. But other than those few things, I was fine. The vision issues would come and go, as did the weakness in my hands, but the migraines and the leg issues were pretty much a constant thing. Lately, my vision is still rubbish, my hands work okay, although I don't have the strength in my hands that I once did; I still get the occasional (like once every couple of months now) migraine; and I last fell off my legs a fortnight ago after not having had a leg issue in over six months. I guess I have been lucky.
@Scorpio

Hi @julz58 its interesting reading your post and how you have monitored your condition in the different places you have lived. Its also great news to hear your MRI was clear. 😊