Diagnosed July 2012, now considering DMD treatment, HELP!!
I got diagnosed last year with rrms, I have had 2 relapses (as far as I know!), these were last July which prompted MRI and diagnosis, the other was 6 years ago which the doctors etc failed to diagnose. Since diagnosis my body feels different, I have since found out there is a difference between flare ups and relapses, so I think I have had a few flare ups. I am due another MRI to see if any more lesions (?) have appeared, the ms nurse seems to think it would be a good idea to start DMD and the neurologist is on the fence. I am sorry if this is going over old things you all probably know about but I am finding it all very confusing what to do. A positive state of mind is what I am trying to keep, but inside, the future feels quite scary. Any help or advice would be very welcome!
Hi There! I too was diagnosed July 2012...and i went on copaxone right away. I am now off of it as iam expecting my first baby- but my plan is to go right back on a therapy after the baby is born. It is a very personal decision and I wish you well which ever way you go but i am of the mindset that you have to do everything you can and for me that includes medication. Best of luck with this decision! xo
hello cjflap sorry to hear about the doctors failing you for that lenght of time.;( there will be some1 on here that can help you and give you some advice that has experianced something similar.can i ask what DMD means? i was diagnosed in 2008 after having a second mri, i was diagnosed with rrms to but my story is i havnt relapsed since 2008, i was advised to take medication straight away. i was told it is an aggresive form so those words were enough for me to start injecting my meds. i stopped injecting last year as all the side affects of the medication started to come back which was making me feel very tired (flu like symtoms). i still havnt had a relapse and its been a year wth no meds??????? but thats MS nobody knows whats next or when!!! its scary for us all your not alone there. rach x