it's been 2 months since my last relapse, which took motor skills from my right side, i didn't take steroids as i'm still breastfeeding. as the motor skills slowly returned the nerve pain i experienced went through the roof burning itching hyper sensitive to hot and cold. i thought things had plateau'd and was settling but yesterday i suddenly found that if i touched anything it felt like my fingers were being hit by a hammer, or i had things rammed under my nails. even the slightest touch sets this off. after my last appointment my neuro has written to my gp to suggest pain relief but i'm scared i'll become a zombie, which seems worse than the pain. amitriptylene was a really distressing experience for me, i couldn't come round from sleep or urinate even though i was in pain because my bladder was so full. any gabbapentin experience to share? the possibility of not being in pain is very seductive but i know i don't react well to drugs.
i've had gabapentin - started on low dose and at my worse was at maximum dosage - i tend to be quite sensitive to meds and get quite a lot of side effects but i didn't have any on gabapentin and when i found the right level it managed my neuro pain really well. i then cut it down until eventually i didn't need it at all. i needed a second round of gabapentin a year later - this time i didn't even need to go all the way up to the highest dose and again no longer need to take it. i used 100mg and 300mg tablets and your nurse will tell you how to build up the dosage and reduce it too. it was great to have relief from the pain and be able to have a shower without screaming when the water touched me!!!!!!! i don't know about other people's experiences are but i think gabapentin is well worth it and there were no side effects for me for a change - good luck x
thanks becks, good to hear a positive story about meds.