@dizzylizzy 

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dizzylizzy

Newly diagnosed

Hey, So I've recently been diagnosed with rrms, after a year of numbness and pins and needles down my left side, optical neuritis in my left a number of times and awful fatique, I finally got my ms diagnosis in January (happy new year to me). I'm due to start treatment soon which is ocervus (not sure I spelt that right) and I have have a lovely ms nurse who has told me all I need to know, but I was just wondering if anyone is on this treatment and how they are finding it? I'm not going to lie, this has knocked me and I almost feel like it's not real and I feel like I wanna to bury my head in the sand, but noticing how my body is etc and being a mummy to two gorgeous boys, I just want to know how people deal with being newly diagnosed. Especially as I was told most last year that it wouldn't be ms and it's likely just me in my head! Love one slightly overwhelmed and worried gal x
@tal0031a

Takes time. It hit me hard too, it took me a good year to feel better. The thing I found most helpful was to talk about it. I don’t know what kind of treatment you will get. I was put on Tecfidera and it took 6 months for the meds to fully kick in. You will have to re learn how your body reacts and make changes.supplement vitaminD 4000iud, get lots of sleep, dont get stressed out, Eat red meat at most once a week, get some counseling, eat as healthy as you can, be active as you can, find something you enjoy to do, get a cooling vest so your eyes don’t get blurry, if u are on Tecfidera get baby aspirin and ice pack that can wrap around ur neck. After you figure out your new body it’s not too bad, more annoying than anything.

@dizzylizzy

Hey, Thank you for your advice, the treatment I'm going on is an infusion one every 6 months. I think the hardest part is getting used to my body, I'm used to going 100 miles an hour haha, but I'm sure I will get used to it. Never thought about a cooling vest so definitely will give that a try. Thank you though, it is nice knowing that it's ok to not feel great with the news, I still feel like it's not real, it's a weird feeling. X