@crazycatlady86 

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crazycatlady86

Newly diagnosed

Hi all! After 5 years of different symptoms, numerous tests, and numerous doctors making me feel like my symptoms are 'just in my head", numerous doctors/consultants referrals missed/forgotten about I've been told last week that I have MS. My symptoms started around 2018 but because I have a prolapsed disc they were initially suspected to be caused by my back causing the nerve pain. Once it was ruled out my back wasn't to blame, they queried Peripheral Neuropathy, that was then ruled out they queried it may be FND (Functional Neurological Disorder) Due to an Advanced Nurse Practitioner checking through my files when she was doing my repeat prescription she called me to check in as my notes showed 'there was no progression' in my treatment. I told her I had not been spoken to anyone regarding my brain scan as the initial Neurologist retired during lockdown, she said she would look into it. 3 days later I have a phone call from the hospital asking if I could come in for an appointment the next day. I didn't think for a minute the results were serious as I was told the brain scan was just to rule out FND and thought the urgency to get me an appointment was because the last scan had been taken so long ago to give me. When I saw the new neurologist she also clearly though I'd been spoken to about my results, but anyway she talked me through my scan, the diagnosis and the next steps - first step is an updated brain scan and then treatment based on my new scan results. I think from her expression she expected tears but honestly and most confusingly for me, my only emotion so far has been relief!? I am not going mad, I'm not looking for attention with 'strange symptoms' I actually have a reason for being almost constantly tired and a reason why my brain someday simply choses some days to not work or communicate with my body!!!!! At the moment nothing has really changed apart from having legitimate reasons for having a lot of blonde moments. Obviously my future is probably going to be very different but for today I'm just the same as yesterday. The only thing I'm focusing on now is making sure I eat well, get to the gym as when I can and pay more attention to my mental health. My hope in joining this forum is to have someone who has been where I am and is still carrying on with a normal as possible life
@ChiMum

Wow! You are really taking this all in your stride. Good for you! I was diagnosed with MS last December and it was a complete bolt out of the blue, but like you it was good to have answers. I wish you well on your journey and you can always come in here to vent, share or ask questions