secondary progressive
Like I said to the neurologist, I guess the clue's in the name! Most people I know with MS are younger than me and have Relapsing Remitting. I went to a seminar once when I was surprised to hear of other MSers who had run the marathon, and at other times, they are disabled in some way. Whilst my condition on the scale of things is mild, I now can't walk very far, have problems with balance & co-ordination, can't write, and now my speech is slurring. As opposed to my RR friends, my condition is the same, or gradually worsening every day and it seems there's nothing that can be done, other than "self help" etc.
Is there anyone else in this stage who can identify with this? (Thanks, I'm age 60)
Chris
Hi @chriscamp and welcome. Yes, I can identify with you. I've been SPMS since 2010. Up until last Summer, I had some independence. I could drive and I used to take myself swimming three times a week. And, I attended a yoga and Pilates class. All activities to try and maintain the status quo. However, for the past year, I have been beset by numerous UTIs, which have taken their toll. My independence is under threat, as I'm presently unable to leave the house alone. I'm still optimistic that I can recover my independence, but we have to remain positive, to keep ourselves going and maintain a decent atmosphere in the family home.
Evening@chriscamp, I am 64,full time wheelchair user unable to walk. I can stand using grab rails as long as lock my knees. Moved into a flat after my wife died. Have put a shower in,have a decent micro-wave and use a wheelchair with e-motion wheels,this enables me to get to the shops etc.Its a bit lonely sometimes, but you only have one chance at this. Keep going.