CCSVI
hiya everyone! still in process of being diagnosed but its thought of 90% of having ms so far! i have been doing some research and it seems that the CCSVI is quite a good option for server ms sufferers? has anyone had a look at this option or actually opted for it done? want some advice got too young kids and just want to spend a bit of my life with them without being in pain and not knowing where i am from day to day. drop me a mail to let me know what they think! the CCSVI seems to have a good number of followers and believers??? cheers amy
There has been a lot of debate, some of it heated, since Dr Zamboni introduced the concept of CCSVI. Unfortunately, it hasn't yet been successfully proven. There are quite a few details here :- http://www.mssociety.org.uk/ms-news-and-research/ms-research/potential-treatments/emerging-areas-of-research/ccsvi#nice So, it's not available on the NHS. There is a private clinic up in Scotland that would be happy to scan you and, if necessary, perform the necessary venoplasty, whilst emptying your bank account of almost £10K. Yes, there are encouraging tales of the benefits of this treatment. But, you have to weigh that up with those that are now a few thousands lighter in the pocket, where it hasn't really worked - the latter group aren't so vocal. So, basically, it's a £10k punt on a procedure that may provide some benefit, although the procedure may need to be repeated as the underlying problem could return.
Evidence is predominantly against CCSVI being a cause of MS, or even being more prevalent in MS patients. Aside from cost and lack of efficacy issues, there is a small but real risk of injury and death from the procedure. There are a lot of interesting research studies and drug trials out there. CCSVI is being proven not to be there. Here's a summary of the latest papers: http://multiple-sclerosis-research.blogspot.com/2013/02/ccsvi-monthly-february.html I think that there are a lot of scam artists trying to separate us from our money based on a hope for a miracle cure. Also remember that the placebo effect is real and probably strong in MS patients.