Newly diagnosed advice on neurologist
Hello new to this group and MS. I spent 10 days in hospital in March this year, had lumbar puncture, MRI and IV steriods. I had another scan in June which showed new lesions in my brain.
I met my MS specialist nurse on Monday and she was surprised I had not been offered any medication after my diagnosis of RRMS in July.
Has anyone else not been offered medication ? Just wondering if this is normal or not ?
Also has anyone else asked for a different neurologist?
Grateful for any advice x
Hi @Woodstock. If you have a confirmed diagnosis of RRMS it is usually common to be offered meds sooner rather than later. Some different health authorities have slightly different approaches though, depending where you live. It's your right to go to a hospital of your choosing. Try to contact your nurse and ask for the earliest consultation with the department. Did you have a blood test Monday? If so, she may be waiting for your results.....make a pest of yourself! You can research in advance, use the MS Society website which will take you through different DMDs (disease-modifying drugs/treatments). All the best!
I can't say if it's "normal," but it really doesn't sound that way to me. Once I was officially diagnosed, my specialist asked what I wanted to do. I told him I saw no reason to wait when I could start treatments right away, and so we did. I presented symptoms, got an MRI, and that was the basis for my diagnosis. I had a great specialist at a teaching hospital. My advice to you is make an appointment with your neuro forthwith to discuss therapies and pick one that suits you best. Also discuss what you can do if it doesn't work out. If the neurop refuses, go to someone else. I credit my specialist and the quick decision on therapies to keeping me walking 25 years after the fact.