Working towards yr2 cladribine
I saw my consultant today and finally feel like she’s listening to me. My lymphocytes are back to normal levels six months after cladribine just need more bloods in October and I’m ready for year two. As I failed in my attempt at my MRI in June not sure how effective the tablets have been for me but I have noticed a little less fatigue and little sensory issues clearing up so i definately feel an improvement although my legs are still very weak and my balance is not right so still need my stick outdoors. I’m feeling more upbeat and positive certainly since my consultant has agreed after next year when I have MRI when yr 2 is done she is happy for me to only have further MRIs when I need investigation due to a relapse or worsening of my symptoms and not yearly. Anyway I just wanted to share my update with you all. Have a good day everyone x
@wendyhills I have just been having a look through posts about mavenclad as I am just about to start taking it. I was diagnosed 7 weeks ago and it was a total shock as I had not been expecting that news! How has mavenclad been for you?
@kcochrane-85 mavenclad has been good for me seems to have prevented a relapse so far I’m tired all the time especially in this heat but all in all it’s been a good thing it seemed scary at first but two years in I’m doing fine with no major side effects. I was diagnosed 3 years ago and early days of diagnosis is very scarey just remember this is a lovely site and there is always someone there to give advice if needed. Just take your time and be good to yourself If I can help with advice you only have to ask x