@Tildum 

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Tildum

Anyone receiving Tysabri at KCH in London?

Hi there, I have been receiving infusions at King's College Hospital for the past 2,5 years and I had been - until recently - followed by my MS nurse at St Thomas' hospital. I found out few weeks ago as I tried to email my MS nurse that she was not working in the MS service anymore as I received an auto reply. Long story short, I was told that all Tysabri patients were now under the care of the KCH team. I do not know who my new MS nurse is at King's and the nurses from the treatment team at KCH (who are absolute gems btw) aren't able to give me any names either - although they do say to email or phone the service if anything urgent arises. I have been feeling a bit weird recently about not having a direct contact to get in touch with being under a treatment that sometimes still makes me feel very anxious. Has anybody else here experience the same situation? Does anyone know who the community nurse for Lambeth is?
@AndreaG

@Tildum Have you tried contacting your neurologist. You could also try PALS at Kings College. They can investigate for you and perhaps get you some answers.