Last reply



Hi everyone, I was only diagnosed January 21, told through a phone call!! Was hidden for years, thanks to my Rheumatoid arthritis. I'm an ex-military bod, was always active with a very physical job. Now have restricted mobility, issues eating/swallowing, difficulties with numbness and the brain fog, yuck!! Biggest thing I hate about MS is brain thinks I can still do things but body say NO!!! So frustrating!!! Hope to get to know many of you. Be kind to yourself Mandy

Good to meet you. Welcome to a comfortable place where you can share your thoughts and meet people who understand. Your comment resonates as I also received a phone call at work in 2006 telling me that the results of my spinal tap were positive for MS. Not an ideal afternoon at work. And to make it worse, the neurologist had told me that there was “less than a 4% chance”! Not sure how or why he could possibly say that. Anyway, yes my brain says do the laundry, clean the house, go to the store, pick up a few things, and make dinner. But my body is like, “Yeah, I’m out of gas after one load of laundry!”. Also hard because the way I feel is largely invisible…so there is that difficulty. How often should I talk with family about what I’m feeling before I become a chronic whiner. I try to balance that. Anyway, thanks for sharing your thoughts.


Yeah I get it. You tell please I'm having a bad MS day/it's the MS brain not working, and they just don't get it. They think it's an excuse or oh no not the MS excuse again, or dismiss it as the same as something they have experienced like a broken toe lol. Try and be kind to yourself