@Teacherwithms

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Teacherwithms

Back to the future

If you could go back in time and tell your newly diagnosed self something that would have made your MS journey easier. What advice would you give?πŸ€·πŸΌβ€β™€οΈ The year I was diagnosed, I had three relapses within 12 months. I was doing way too much if I think back. I was working horrid shifts for the NHS and I felt so crappy that whole year. I think I would just say know and listen to your body. It's ok to say no to friends (and family.) Think of you because true friends will forgive you. Its been 3 and a half years now and o know when I'm tired or when I cannot do anymore 😊 the spoon theory helped a lot to explain to people how o was feeling. 😊 What would you say?

Adriftinthewood

@Adriftinthewood

The very first thing I would say to my newly diagnosed self is that you might want to cut back on the drinking whilst on steroids - it won't help the yet to be diagnosed liver condition. On a MS note it would have to be that everyone's MS is different and no one (including the doctors) really knows how it will pan out. So don't let the fear of what might happen stop you from doing the things you enjoy.

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Teacherwithms

@Teacherwithms

A agree. The GP first told me it was all in my head and she had been a doctor for about 30 years now ha-ha they received my transfer quite quickly after that 😝

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AbiC

@AbiC

I'm looking forward to seeing replies to this! I'm newly diagnosed and trying to get all my thoughts to chill out a bit πŸ˜‚ from work to life in general, it will be interesting to see what people wish they had known

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Teacherwithms

@Teacherwithms

I'd just listen to your body. If you feel too tired then don't do it. It's ok to say no which took me a year to realise 😁

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Domi

@Domi

I would tell myself to get Tysabri right away & not switch again - was on Avonex, Rebif, Rituximab & Gilenya, but had problems with all of them... Probably would also tell myself that better people come along after losing (or better choosing to lose) some "friends"

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doubleo7HUD

@doubleo7HUD

Id have to tell the Past me not risk leaving the house without a nappy when travelling to the seaside πŸ˜‚, make sure you take a spare pair of pants when going out on the lash and the winning lottery numbers for Saturday 20th Feb 2021 are.... jobs as bloody good en

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jj5sim

@jj5sim

I would tell myself that my ambitions don’t have to change but the route to get there might differ slightly. Take a breath! The worries of the future are not happening right this second so take note of what’s good in your life and appreciate it. Listen to your body. Anything that comes your way you will deal with it as it comes through knowledge and understanding.

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Stumbler

@Stumbler

Avoid stress. Don't sweat on what's not important....

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Thalia

@Thalia

A great advice I got from a MS nurse: Do not read and think too much about all the symptoms that might eventually occur with MS - only treat the symptoms YOU actually have!

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Thalia

@Thalia

And my own experience after being poorly diagnosed with a severy back problem only months after the ms diagnosis: insist on other diseases being still considered possible!! Many doctors stop looking for the real cause once they know you have ms. But we can get anything else too... and the appropriate treatment is sometimes not with your ms neuro. (No back problems left after the right diagnosis and surgery - the pain never was ms related...) So make sure any symptoms are properly diagnosed.

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Joajoa

@Joajoa

@jj5sim great answer!

Chezy

@Chezy

I'd tell my past self to not rise to the crap I got from my ex and his new missus, I had a diagnosis and a marriage breakup at the same time so it was hard to work out what to deal with first. However, in hindsight MS hasn't changed my life alot, I've travelled, done allsorts with the kids and I'm doing a degree now. Avoid stress, abit hard with the world at the moment, live for each day and know that hopefully it will all work out in the end 😊! 🀞

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Vickyms

@Vickyms

I'd tell myself to rest. I'd just started a new job when I was diagnosed so rushed back too soon and never got myself to my best. It was only after a BC diagnosis and surgery that I took the time to really get 100% and realised how I could be feeling. So get as many sick notes as the doctor will give and focus on you.

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