Diagnosed and feeling numb
Hi guys!
I was diagnosed as of 8th November it took quite some time. I felt the symptoms as of last March been through the mill over the past year and a half so many MRI's etc then finally suggested go to Queen Elizabeth hospital in Birmingham where my MS was finally confirmed. I got a letter today where the neurologist felt like treatment options were either Ocrevus or Kesimpta and that I would get an appointment with a local MS specialist nurse to discuss this etc. No idea about these treatments. No idea about anything even though I googled my symptoms over the past year and knew yup its MS. I felt like the my local NHS has made me feel alone and suffer for 21 months!! I had no idea what was happening and I have hated the changes my body has put me through. I have hated this journey and how its made me feel. I have tried to act as I was and I couldn't its took so much out of me I'm just so annoyed and just so down and I keep on thinking there are people so much more worse off than me. Trying to rationalise everything. I feel guilty all the the time and that I should cope better but alas I'm feeling like this numb to everything. Sorry guys this is more a rant more than it is asking for advice. I just want a moment whether it be a minute or two away from this I have lost who I was I'm not the same anymore. I'm just sooo numb and lost :(
thank you everyone for taking the time to read this I hope you are all well.
Hey, sorry to read about how MS is making you feel. A diagnosis is a long and tuff journey. Ocrevus and kesimpta are good choices. Although they work in a similar fashion. Just one is a self injection at home, and the other is an infusion in hospital. I think Ocrevus is slightly more efficacious, but that maybe because Ocrevus has been around longer and there is more data. An MS diagnosis takes along time to get used to. A new unexpected way of life. People here have lots of experience.
@Simmer It's a bit of a grieving process after you get your diagnosis and start experiencing the loss of abilities, that you took for granted before. So coming to terms with the changes that impact on your daily life, will take some time to get used to. My diagnosis didn't hit me that hard, as I'd thought it was probably MS anyway. However getting used to the fact, the growing numbness and the loss and changes of former abilities, will take some time to get used to and then finally accept. You're never alone in this group and you're surrounded by folk with a shared experience. You rant whenever you need to! I'm sure that folk here will be willing to listen, understand and help.