@Sheltielove 

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Sheltielove

Optic neuritis and other eye issues

Hello there, Decided to reach out because I am at a crossroads. Diagnosed with relapsing remitting MS in 1998 and started Avonex that same year. Been on Avonex Ever since. Over the last 10 years my MS has remained stable with some noticeable weakness in my legs since the pandemic, I contribute that to my lack of activity. My big issue is my eyes. Lost vision in my left eye and 2012 due to optic neuritis and have just had an MS flare up and October this year, not optic neuritis but a lesion pressing on my optic nerve causing blurred vision. Given the course of steroids and my vision is improving and pain is gone. Here’s my big question. Of course doctor wants to switch meds Does anybody have my similar flare ups and eye issues and been on a medication that works for them.? Thank you if you've taking the time to read this entire chat!!
@Charlie63

🍀not able to offer anything but best wishes. I was diagnosed in 97 and haven’t been on medication.

@Ematt0426

Optic neuritis in my left eye was my first major symptom. After two rounds of steroids and two Ocrevus infusion treatments, I still have bouts of blurry vision. The lesion that caused mine is my largest by several times (it’s huge and the size caught me off guard compared to my dozen others). I have a follow up appointment with my neuro ophthalmologist in January. When I originally saw her she said that I’ll probably still notice it on flare days, stressed, or when my temperature sensitivity kicks in. The worst of mine is gone but it’s still disorienting at times. You probably have some scarring. :( Idk any medication that will help, but maybe finding a neuro ophthalmologist will help, especially if you’re still having issues years later. I wish you the best of luck!!!

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