@Ribbons 

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Ribbons

Drug feedback??

This post sort of crosses over with some of the comments on @iang post 'Tysabri Pill'. I've been advised by the consultant and MS nurse to go on Tysabri. I'm getting the JCV test tomorrow. I'm feeling a bit of pressure from the consultant to get it but I think that's because it's deemed to be the best option for someone in my position. I've done quie a lot of research and am moderately sciencey. I know that there's very little long term drug treatment data out there, testemant to relatively short time all these treatments have been around. Copaxone has good data for 10 year + experiments but these are generally open lable and therefor the data is less reliable. Anyway, any feedback on: - Different drugs and long term usage with respect to effects on disability and rate of progression - 24+ month Tysabri users - people who have stopped using Tysabri after a treatment period - what have you gone on to, how's yer health etc? All feedback is eagerly anticipated/gratefully received. Cheers
@Hayla

I just switched from Extavia to Tysabri a week ago. So far so good. Im feeling great, have recovered some energy back and not having the strain of the every other day self injection feels amazing! Its a bit of a pain to have to stay in the clinic for the 3hours after (specially when u have a Chatty Catty around) but as long as u take a book or ur IPod/Pad along u should be fine. Just make sure u pack some water&food with u too! Good luck! =)

@krissie2012

Hi, I switched from Copaxone to Tysabri back in September (I stopped the Copaxone in June and then waited for a start date). I am JC+ and opted to go on it any way as my MS was running away with me. The first three months were horrible, but its getting better now. If you wanted to get more information you could read various diaries of people who are on Tysabri at: http://www.ms-uk.org/index.cfm/tysabri(open)