@Renee_dc_

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Renee_dc_

Relapses / symptoms

Sorry for the rant in advance but lately I’ve been stressing over symptoms and what they could mean for how my ms is progressing. When i was first diagnosed 4 years ago i had a crazy burning sensation all over my body and a completely numb left side for months and since then i’ve had no way to tell if I’m having a relapse or not. I get a painful neck some days because i have a large lesion on my spinal cord near there. I get headaches and sometimes small patches of burny skin here and there and fatigue. Ive noticed a head tremor when im anxious or focusing too hard but i heard that could just be essential tremors and maybe not due to ms. Most symptoms go away within an hour or two. Other than that I don’t notice too much but im worried that if i dont have separate relapses does that mean i have primary progressive ms? Im diagnosed with rrms but don’t get enough info from my dr or nurse about it or what it could mean other than i have had more lesions come up in my mri in the last year so and any info would be greatly appreciated! Feeling very hopeless about the future and like im just waiting until i become more disabled.

jamoranto

@jamoranto

Hey @Renee_dc_ Read up on the progression of MS I myself have progressed from RR MS to secondary progressive MS. I myself no longer have relapses or at least have the horrible feeling of having one. With the right exercise and proper diet you will learn more about your body and what you have to do in order to do most of your days without the stress and frustration that our disease plagues us with. Best Jorge

Renee_dc_

@Renee_dc_

@jamoranto thank you! Was it the lack of relapses that lead to the secondary progressive diagnosis? I feel like my symptoms have bothered me less than when it began if anything so im not sure if it has gotten there yet

jamoranto

@jamoranto

No Renee it wasn’t because of the lack of relapses that lead my to SPMS. I believe it’s just the the progression of MS. Either it be RRMS or SPMS or PPMS It is something that we now have to work with in our daily routines. Sure it can really tear you up sometimes but I can also help you see the great things you have close or afar from you.

Stumbler

@Stumbler

@Renee_dc_. the following will tell you what is (and isn't) a relapse :- https://mstrust.org.uk/about-ms/ms-symptoms-and-relapses/managing-relapses Past relapses can leave residual damage behind. These past symptoms can resurface when you're over-tired, over-stressed and dealing with an infection. The situations can cause you MS symptoms to "grumble". If you can "listen to your body, you will recognise the signs.