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Possible Misdiagnosis

I was diagnosed with MS about 5 years ago. Since then, I have suffered many, many symptoms and been put on numerous medications. It's been very difficult physically but try to keep a positive outlook. Yesterday I had an appointment with a new neurologist. She looked over my history and told me that everything indicated that I do not actually have MS. She's going to do a bit more testing but It's actually far more likely that I have Functional Neurological Disorder. Basically, if you think of the brain as a computer, if MS attacks the hardware, FND attacks the software like a Trojan virus. It means that all of my symptoms are VERY real and caused by miscommunication between my brain/body but there's no physical reason for it. Instead, it's rooted in biology/DNA & trauma response. After all this time and medication, doctors, forms, parking permits, needing to request accommodation at work for my disability, etc. I feel like an imposter at best and a liar at worst - even though I know that it's not my fault. I know that it may still be MS. Honestly, I'm hoping that it's not because the other is treatable. I don't know what to do and I don't know how to discuss this with the people in my life.

Wow! You are definitely not an imposter. I have PPMS and my wife has FND. This was discovered after years of misdiagnosis for other issues as she also has fibromyalgia so suffers from electric shock-like pains, numbness muscle tension to the point where she was unable to walk for almost 3 months. It all came to light during one of my consultations with my neurologist, she was running through a list of symptoms and explaining different things...at this point and said she should be speaking with my wife. Later an MRI was given to rule out MS but the final diagnosis was FND. You are definitely not an imposter as FND is as rough as MS. You are not alone.


You still have a condition so definitely not an imposter don't be so hard on yourself everyone has different issue's hopefully you will get an answer to what it is soon and you will get the right treatment for it