@Preeya 

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Preeya

DMD making me feel worse?

Hi everyone, I was diagnosed January 2022. I started Tecfidera in June and have been on the high dose (240 mg 2x/day) for about a month now… I feel worse and worse every day. The nausea, fatigue, joint pain, brain fog, flushing, stomach issues… I don’t feel like myself anymore. The ms nurses have told me there is an adjustment period to the medication but I would rather just not take it anymore. I am miserable and I miss my old self. For reference, I do everything I can to take care of my self. I eat a healthy balanced diet, i exercise daily, I try to drink as much water as I can in a day, I get enough sleep etc. I just want to feel normal again… Has anyone else experienced this and have any advice?
@suzannedm

Hi Preeya, my first month on tecidera was pretty tough too. Vomiting if I hadn’t had a big enough breakfast, hot flushes - so much so I was considering coming off of it- but it did settle down and now I can eat my ‘normal’ breakfast (2-3 pieces of toast and a piece of fruit) and I’m fine. Think it takes the body a while to adjust to it. But I’m grateful now and stuck with it and haven’t had any relapses since my initial diagnosis (a complete shock) last November. I’d advise to just stick with it. Best, Suzanne