@us-Emma &@orlando27-rebuilding post Lem

Hi guys, I felt somewhat guilty on encroaching upon Ant's territory, so thought would just start a brand new one devoted solely to ANYONE who wishes to contribute to our previous discussion commenced by @ant re recovery after Lemtrada. Thank you for your sweet sentiments @orlando27, I was aware that your predicament may be past what medicinal herbs might offer, but thought would mention in any event, just in case! @us-Emma, thank you for your lengthy replies. I had a horrid anticipation of you mentioning swimming, which regrettably is a weak point for several reasons: dislike water as cannot swim (never managed to float despite being extremely slender!), swallow too much water, my urinary frequency, and most significantly, the fact that my legs immediately (if not already) become numb if they are bare for literally a second! Enough reasons? I am aware that it would be the most perfect exercise for me if I could overcome these hurdles. I too have issues with standing which are still ongoing post Lem, but my ability to walk has improved in some respects but has been frustratingly inconsistent. I believe this to be due to the fact that despite using an amazing and extremely light walker ( rollator) which possesses both a seat and basket giving me independence again, I am having difficulty building up my walking stamina as I do not have the supportive husband that you are blessed with. Consequently, I am forced to harangue him to take me for a walk in our nearby, beautiful park, in the event I over exert myself and am required to be carried back to the car. As he takes me infrequently, I inevitably get carried away and always push myself as I feel I have to maximise the opportunity as I'm not certain when it might recur. This is a major issue for me. Some friends have offered, but generally once a week as of course they are busy understandably raising their families. But should the need arise, clearly they would be unable to lift me, so I am wary of accepting their offer as I have overdone it with both of them , but was forced to feign all was fine and complete the agonising walk back to the car with horrendous drop foot and not mention lest they felt guilty, when it was entirely my own fault of course. At home, I do all my own personal care and always have done, clean as much as I can manage but find that very difficult which is frustrating as I very fastidious. I am lucky to have a cleaner who cooks for me also. My husband used to work in the City, as I did, but gave up work recently to start his own business last year after my Lem, but he does not offer to do anything for me ever, eg medical appointments and oxygen (which I'm happy to go to alone), but find the little things at home more difficult as my balance is so off and my lower mobility strength much impaired in contrast to just over a year ago when despite being thin, I was super, super strong. If I do ask (rarely, he's unhappy at being asked and does so begrudgingly), so I do attempt not to. Not even if I am struggling, as he simply does not notice, or complains if he does. I also had not driven for a few months (not years), but was forced to go out alone when I really was not sure I was ready for it, but thankfully I waited until I thought I was, and after a little while, it became natural again. I'm saying this just to put into context previously re overdoing it when out with him. Plus, to demonstrate we are not all as fortunate as you, and well done to your husband for being so supportive, I applaud him! So I do waste energy on little things which I feel I ought to be conserving to walk further and exercise to build up core and lower limbs' strength. I feel I was progressing with walking (with the aid of the rollator), which I have found supremely helpful, and feel confident that I am mimicking the walking pattern correctly and this neuroplasticity can only be beneficial. However, the latest relapse put paid to that (drop foot). I do know I will recover so must be patient and not recurringly set myself back by attempting to walk to the point I feel it again (currently a matter of a few minutes!). However, again this changes repeatedly so I'm not certain what my safe baseline is. Do you happen to know of any others that had relapses after Lem? Is there any other particular rehab advice you might be able to offer? Did your ability to stand again suddenly reappear at 4 months? My issues were largely related to burning upon standing, eased by motion (limited) or sitting. Overall, I would reiterate that I feel extremely fortunate to have received Lem, and am aware it is due to my own failings and lack of patience as to why I have not progressed further, but progress I will, of that I'm certain, It's all part of a higher plan! Thank you to you both ?.