@Treatment advice on Shift.ms

Treatment advice

Hi, I’m Mia. I’m 22 and live in Cambridgeshire in the UK. A couple of weeks ago I was diagnosed with RRMS. It’s been tough as a lot has happened in a very short space of time and it’s all still very new to me. I’m looking for other people my age for advice and their experiences living with MS as I don’t know anyone personally my age or any age who has MS, so I feel quite alone. I’m currently deciding on treatment options and am eligible for the high efficiency treatments. I’m stuck between Ocrevus and Lemtrada. If anyone is having these treatments and can tell me about their experiences with them, that would be of great help. Also if anyone has any advice about how to make a decision about the treatment. Thank you for reading this

Hi Mia. I was 25 when my symptoms of MS started. I didn’t really know anything about it. I was always reluctant to start medication and left it until 2017 and started techfidera, I then moved to fingolimod and now siponimod since 2022. I could previously walk far and was independent and I didn’t really research the medications , trusted the drs and felt like I was alright, which I was then. Last year June 23, I had to stop driving and take medical retirement from work which I loved. Now I am kicking myself abit that I didn’t choose the ocrevus which would probably have been more effective in preventing disability??? I was worried about having an infusion and opted for tablets. It is a lonely illness, especially when you become more disabled. I am mostly at home now all day. My advice to you is Don’t assume all the treatments are as effective as the others and do your research on them. Keep positive you can still live your life as you want. I’ve had a great life and didn’t change anything until last year but I feel like I have made some wrong choices re. the medications I was offered xxx