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@Marjolie 

Last reply

Marjolie

Sativex - your thoughts please

Hello all, I've got a visit to see my GP this Wednesday, followed by my Neurologist next week; I want to try something to control the pain and spasticity I'm having. I tried injections yonks ago (to no effect) when I was RRMS, but now in the latest stages (SPMS) I need something more. So your thoughts please on what works best for you- I'm wondering if Sativex is the answer but I would like to know how you feel about it, does it help, what the downsides are and do I ask the GP or the Neurologist for it? Failing me asking for help (they seem not to give a flying f*ck at a rolling doughnut, plus I'm too proud to ask for help= impasse) I wonder if you could give me the number of a man who knows a man (nudge nudge wink wink sort of thing) Or: A gun supplier A hit man Victor Frankenstein Thanks! Marjolie xx
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@mammamoose
@mammamoose
 

I asked my neurologist about savitax and was told it was not supported by the NHS, (at least not in my area which is Devon and Cornwall) plus it is expensive supposedly costing £11 a day so, a private prescription is a definite no no. How it is that expensive is anyone's guess, I know for that much money one could obtain a reasonable amount of waccy baccy which would last longer than one day! If you do get Victor Frankenstein's number please share :)

@Stumbler
@Stumbler
 

Yes, that rolling doughnut has evaded me as well! But, I have got the same response as @mammamoose above on this one. But, generally, the NHS would have liked you to have tried (and failed) with all of the existing pills and potions before trying the latest and most expensive medications. Sativex does do a job though. We have a member, who was using Sativex and she swears by it. I talk in the past tense, as I believe that the NHS were looking to stop prescribing it for her. There is also another member in the next county to me and she has just got herself on a trial for Sativex. The next county! - she lives less than a mile from me!! Waccy-baccy may be considered as an alternative, but it may be best to "vape" it, rather than smoke it.