@Mandeeleew 

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Mandeeleew

To be on treatment or not…

Hi! I am new here and I am beyond excited to meet others living with MS. I have great family and friends for support but they just don’t understand and I find it hard to explain what it really is like. I was diagnosed in 2014, had two back to back relapses but by December things were stable and I eventually went on rebif. After a year+ I went off to get pregnant and after my youngest was born I never went back on. I did not want to inject (I already deal with insulin/CGM for my T1D) and hated the side effects of rebif. I feel okay most days. I’ve focused on lifestyle changes- diet, sleep, stress management mostly. My MRIs have been stable- in fact my neuro was surprised to see the marked improvement on some of my lesions. But I continue to worry I’ve made the wrong choice not to go back on treatment. When I’m stressed I wake up in the night in cold sweats that I will regret it some day. Anyone else struggle with this?? I know everyone’s experience is different but I just dread the thought of treatment again. Any advice or shared experiences are welcome!
@lemon

There're more treatment options now than in 2014 and you will likely find one that doesn't involve injections or bad side effects. They're effective at preventing relapses and give you a much better long term prognosis so for me personally it's a no brainer to be on one. Good luck with your decision x

@Mandeeleew

Thanks @lemon! My last two appointments have been phone appointments with Covid restrictions so I’ve never really gone into discussions with my neurologist re:different treatments and he’s never brought them up. Hopefully my next visit is in person (if our MS clinic doesn’t get shut down)😬