@LucyR1991 

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LucyR1991

Anyone else not offered treatment?

Hi everyone, first time posting and I can’t seem to find if anyone has discussed this before, so thought I would ask! I’ve not been offered any DMTs for my MS, and I’m really struggling to understand why. I haven’t met anyone else who hasn’t been put straight on a DMT, so I really don’t understand what makes my case different! For some context, I got diagnosed with RRMS a year ago (I’m now 32). It came out of the blue (as it often does!) with a bout of optic neuritis in my left eye which caused me to lose vision. Thankfully my vision came back, but an MRI showed a few small lesions on my brain so I was given the diagnosis. I have had several more MRIs since, all of which showed a few more brain lesions each time, plus a few more symptoms (chronic pain, headaches, muscle spasms etc). I’ve only seen my neurologist in person twice, with the most recent appointment in July last year when I got the diagnosis. He said at the time that no treatment was needed, and my nurse has confirmed that more recently. But since I’ve had more lesions in each MRI, I read about the criteria for each drug and I would qualify for quite a few of them, so I’m at a loss as to why it’s not necessary for me. I do trust my team’s judgement on this as I’m no expert, but I’m just curious to know what makes my case different, and why exactly they don’t think it’s worth me going on a DMT. If anyone has experience with this, or could share some insight on why some aren’t put on treatment, I’d be really grateful! Thanks in advance :)
@Hettie

The only thing I was offered in 1995 was steroid infusion. I now have SPMS and May take Siponimod, waited over a year 🥰

@DMcIvor74

Lucy, I was diagnosed in November 2018, prior to other major medical issues. I am on Tysabri infusions every 4 weeks, and touch wood, I haven’t had a relapse for over 6 months.