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@LM24 

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LM24

Starting Tysabri on Monday

Hi, Had MS for approx 16yrs. I've been on Avonex and over the past 4yrs Gilenya. Unfortunately both didn't work for me and my last MRI showed my MS was still highly active and had acquired a number of new lesions despite being on Gilenya. Lemtrada was discussed but apparently the change from Gilenya to Lemtrada has not gone so well for some patients so it was decided I'm going to start tysabri and that will be on Monday at the Sunderland a Royal hospital. Has anyone else gone from Gilenya to tysabri? Any advice or tips you can give me? Anyone on tysabri at Sunderland royal or nearby? Eager to get it started but a little nervous too as I'm JC positive. Thanks!
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@gates1989
@gates1989
 

Hi @im24 I am starting Lemtrada in Feb from Gilenya, nobody said anything to me about it not going well but we will see what happens!! I was on Tysabri for 5 years prior to Gilenya, all I can tell you is that it was an absolute miracle for me!! Best decision I ever made. Totally gave me my life back I hope it works that well for you ? Good luck xx

@LM24
@LM24
 

Thanks gates1989 My neurologist talked about a patient who had a bad relapse after switching from Gilenya to Lemtrada but everyone is different and that's only one patient. I wish you luck for starting Lemtrada in Feb too. As you said we can only see what happens and give these treatments a try! Pleased you got on well with tysabri that's good to hear. Good luck ?