@KvH- 

Last reply

KvH-

Fatigue question from newly diagnosed

Hi all, I was diagnosed with relapse-remitting MS a year ago and still trying to deal with the uncertainty about what this means for my future. One question I have is around fatigue. I hear it's very common, but I can't really envision what that means. Does it only occur during relapses? Or also if you have no other MS symptoms? Does it occur all the time for years, or is it typically a week? How intense is it (e.g. what does it prevent you from doing) - and is that intensity consistent or varies throughout the day/week/month/year? Thanks so much for sharing your experiences and thoughts. Just trying to get a more realistic image of what may mean for my future, family planning etc..
@Laurie_F

My understanding is that fatigue, like most MS related issues is very changeable. We all experience it differently. Certainly mine can change daily as well! 😬 Mostly, I reperience physical fatigue when taking on certain tasks. Anything that involves balance wipes me out, hanging laundry for example. It's manageable though, I tend to lie down for 15 minutes or so afterwards and then I'm good to go again! 👍🏻 My fatigue ramps up in the week before I get my infusion. Walking is trickier for me then and I definitely get fatigued more easily! My physical issues affect my left side, it's so weird to have only one leg feeling tired! 😂 All of these things are manageable though, so try not to worry too much! I've never let my MS stop me from doing the things I want to do, for me it's just about finding strategies to make them manageable! Good luck! I'm sure you'll work it all out! 🤞🏻x

2
@Morgan_Cody

Hey there. First off I am sorry about your diagnosis. I would not wish MS on anyone. But, I will say life isn't over. I have been living with MS for over 5 years and have had my ups and downs but it does not control or rule my life. That being said, I think fatigue can be different for everyone. It also changes as you change. The older I have gotten the more I notice it. I don't think it is necessarily because of my MS but just simply because I am getting older. I definitely noticed it more when I was in times of relapse. That was a very real "this is MS fatigue" feeling. I would get super tired from just doing normal daily tasks like getting dressed. Now 5 years in, I notice it more when I tend to "over do it". For example, this week I started back to work from Christmas/New Year break and jumped back into a normal routine of wake up at 5:30am, work by 7, full day there, and then head to the gym where I did a lot more than I should have for starting back up this week. And then I did it again the next day. All that means today I am feeling very lethargic. For me, I feel fatigue as having to really put extra effort into moving. I don't know if that makes sense? But honestly, on a normal day I think I feel just as fatigued as a normal person. You may feel it more certain times of the year or you may not. Personally, I take other people's experiences with a grain of salt because they are their experiences not mine. Also just because your doctor tells you you might experience something doesn't mean you will. I worked as a groundskeeper for the last 5 years having MS and never had issues with heat even though my doctor said I probably will. I would suggest keeping a notebook of your symptoms and any changes in those symptoms, including times when you have felt really really tired. Write down what you did that day and the day before. That way you can see patterns in what may have caused certain symptoms to flair up, or what may cause more fatigue for you. This can help you to manage your symptoms better. When experiencing fatigue, consider other factors rather than MS. If you are feeling more tired than normal, how much sleep have you had in the last few days? What have you been eating? Have you been on your feet a lot? All of these things could cause fatigue for a normal person, but when those things go unchecked for extended periods of time, unlike normal people, it can take people with MS longer to fully recover. Especially in these first few years after your diagnosis it feels like everything is MS related. But in my experience the more you can rule out and not chuck up to MS helps it not feel so controlling. Your life can be as normal as you make it! I hope this helps. Good luck friend. You got this!

3