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@KgaleA 

EditedLast reply

KgaleA

Anyone have experience with Aubagio?

Hiya, I was diagnosed in 2003 and have been on Copaxone and now on Gilenya but neurologist wants me to switch to Aubagio. He seemd fine with me on Gilenya for almost 6 years until I got shingles on the left side of my face and now he feels I need to change medication to Aubagio. I've bee kinda scared about making the switch cause of the chance of having a massive relaps when I stop Gilenya, that was something I just found out about, it was not in the warnings when I started it. Is anyone familiar with Aubagio? Thanks Kristy
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@ShirleyG
@ShirleyG
 

Hi, I have RRMS and was switched from Copax to Aubagio, and it has been a year and a half and touch wood I have had no severe relapses, I just couldent handle the random side effects of the Copax let alone the mess it was causing to my skin at the injection sites. Then only thing that worries me is my cognitive decline, which is not great but there are thankfully no new lesions in the brain so for that I am grateful.

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@KgaleA
@KgaleA
 

Hi @ShirleyG I did some reading and I saw hair loss as a side effect, have you had any issues with that? Yeah Ive also had some issues with concatenation, memory, I have to use alarms and timers for everything. I don't want to get off Gilenya but neurologist is worried cause ive been on it over 5 years and their is some chance of a brain infection, also have had shingles and just got over pneumonia. Ughhhh it can be so stressful 😣