No remission
I was diagnosed with RRMS may 2023. I was told that I would have remission between relapses and flare ups, but I'm notš I had a relapse march last year and since then I have not gone back to "normal" or as normal as I could be. I am suffering daily with brain fog, muscle pain, spasms, twitches, vertigo and mobility problems. My ms nurse told me that I Mt condition is stable and now we're both scratching our heads as to why I'm still having daily problems. Has this happened to anyone else? I feel like I am deteriorating as the days go onšŖ I also feel very lonely, alot of my friends have dropped me ork see less of me since my diagnosis and I have nobody to talk to who understandsš
I am so sorry to hear you are going through this. I do think MS is a frightening and often lonely diagnosis , which is my shift.ms is so helpful. I know what you mean about remission etc I have permanent issues like foot drop and balance ( among others) and when I had new symptoms my neurologist told me they were due to old damage. I also worry that there is deterioration , sometimes Iām not sure if itās my imagination or because I am not putting enough effort into things. It is hard to tell! It can be quite hurtful when people arenāt supportive. I have read that MS can ā turn friends into strangers and strangers into friends ā and I think there is some truth in that . Sending ā¤ļø
Iāve been dx2021 and Iām still waiting for it to remit !(in short it doesnāt ) keep positive and exercise is all I can suggest !ā¦good luck friend