questions
hello everyone, this is my first post and i’m very newly diagnosed. i’m 18 and hopefully going to uni in september. i have a hospital appointment tomorrow to discuss my diagnosis and any questions that i might have; i was just wondering if anyone had any questions they think would be worth me asking? i have a few but i don’t want to miss any that would be really useful to know but i wouldn’t think of.
i was also wondering if anyone has been through the uni and accommodation application process and if there’s anything anyone could think of that i should make the uni aware of in terms of accessibility needs or anyything that maybe someone has found beneficial in their experience.
i’m very new to all of this and am still struggling to come to terms with it and what it means for me.
i hope you’re all having a lovely day
Hi Check out the Aaron Boster YouTube channel for lots of advice. In particular a post titled Multiple Sclerosis: A message to the newly diagnosed. I’m pretty sure there is one on questions to ask too. I’m also pretty sure there are lots of educational supports available in U.K. universities . I’d say contact the MS society and they will point you in the right direction. I’d say People on here based in the U.K. will also have valuable advice. God luck 👍
mobility and exam arrangements are definitely a good shout! being able to use a computer for my muscle weakness and stiffness and my cane for my balance makes things way easier for me personally and you should definitely let them know you have ms, they give you disability allowance for university which should help out with anything you might need in that regard I think it'd also be smart to ask at your appointment about what the next steps are after getting your diagnosis, what accommodations may benefit you and how you should go about applying to university as well as jobs