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@JohnathanMac 

Last reply

JohnathanMac

How long before thinking different?

Ok so I have had an issue with weakness in my leg for 8 months now and still not had a day of being able to walk properly yet. While I know I need to speak to my MS nurse, she is telling me to wait till I see my neurologist for any info, but I just wanted some peoples opinions on RRMS and long lasting symptoms. How long is too long for a constant symptom to become the norm? Is this possible in RRMS or is this a worrying sign of progression in MS? I seem to have longer episodes, mine have always lasted months rather than weeks, so this could be considered normal for me but I just wanted opinions from other peoples experiences of RRMS. I just want to figure out if I should be looking at this at "Oh I will wakeup one day and all will be better" as I think now or "This is not going to get better, time to start thinking about how to make it work".
20
@Stumbler
@Stumbler
 

Unnfortunately, Relapsing Remitting MS is progressive in its own way. For example, if you considered that you started this journey fit and healthy, at a measure of 100%. Then you have a relapse which would knock you back to 50%. This would then be followed by a period of remission when you return to 97%. So, periods of remission may not allow a full recovery to your . It is important that we try and maintain ourselves at an optimum level of fitness/capability whilst we're in remission, so we rise our measure of wellness as high as we can. The higher the starting point before a relapse, hopefully the higher the end point when we recover. Does this help at all?

@JohnathanMac
@JohnathanMac
 

@Stumbler It does and doesn't help at the same time, not your fault but rather the nature of MS. One of the most annoying things is not being "normal" anymore and at 26 it is really big annoyance. I would love to have a booklet that tells me how it would progress, when things go south and what will happen and it annoys me not knowing this and having to give up control to an extent. The reason I ask this is that every day for the last 8 months I have woke up and tried to stand as I normally do, failed but tried. This morning I woke up and went straight for the stick and I didn't try. In my mind it feels like I have given up on getting better and this last relapse has had a more permanent impact than I would like to admit. I'm just having an off day today I suppose but I think it is all down to looking at a more permanent wheelchair solution for me as I'm still not sure if I will need it for a long or short time so I will probably wait till I see my Neuro and have a chat to my OT tomorrow. Thanks though Stumbler :)