@Joanna_Livermore 

Last reply

Joanna_Livermore

Awaiting a Referral

Hi, I'm Jo and this is my first post. On Monday, following a tough few months of going blind in one eye and then it coming back completely unexplained, I had a follow up appointment at the hospital. I was asked questions about tingling in my legs and bladder/bowel problems and dizziness it balance issues, all of which were problems I've experienced over the last couple of years. Then he told me I need to go and see a neurologist as he suspects I have MS. The more I read up on the condition the more I'm seeing explanations for things that aren't quite right with my body. I'm generally a very happy individual but now, I just can't stop crying. Two days after this appointment I have come out to Greece on holiday and I'm struggling to fully enjoy it :( My partner is brilliant, I feel awful constantly crying on holiday :( the question is, how do I deal with this? Will the cloud ever lift?
@merfield

Hi @joanna_livermore welcome to our forum of friendly MSers. Really sorry about you feeling so upset, and on holiday too. If it's any consolation once you have a diagnosis ( and it might not be MS ) whatever it is, you'll feel you know what you're dealing with and with time you'll learn to 'live with it'. The support on this website is incredible. We all help each other. Try to stay positive and calm- stress doesn't help if it is ms. On here you can rant, or have a laugh, whatever you feel like....you aren't alone with your concerns. MS isn't the end of the world anyway....it just needs managing and telling who's boss! Hope you get sorted soon. NOT knowing is the worst bit!!! Xx

@Joanna_Livermore

Thanks so much for your replies both of you. I think just saying something has got a bit of weight off my shoulders and do feel better. @merfield you are absolutely right. Not knowing is horrendous. It was a shock as when I went into hospital, my eyes had actually got better so was just expecting a "Not a clue what it was but you're ok now, see ya!" I never for one moment imagined that there's a chance it could be something more serious. I hope things get better as I get a formal diagnosis and then can start to deal with it whatever the outcome is x