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@Jessicac 

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Jessicac

Tingly feeling after Ocrevus infusion

Hi, I have recently been diagnosed with Relapsing Remitting MS and have had my first dose of Ocrevus, receiving my next dose this Friday. I just wondered if anyone after theirs had a really strange tingly feeling in their face and limbs after having it? I haven’t spoken to my MS nurse yet but I’m thinking it could be the steroids as when I’ve had them before I have had really bad shakes and experienced the same kind of tingling. Just wondered if anyone else experienced this. Thanks in advance🤍
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@Fayebellina
@Fayebellina
 

Hi! I can’t offer any advice just yet but I’m due to have my first infusion next Wednesday and I’m really scared! What was it like during the actual infusion? Most people I’m reading about seem to tolerate it really well but be good to hear from someone in a similar position to me 💜

@Nic398
@Nic398
 

Had the first half dose 11 days ago and second half due Wednesday. Didn’t have any tingling during or after so it could be the steroids or a slight reaction to the first dose? My Infusion was fine, slight itchy throat half way through which they told me is really common on first session (extra antihistamines solved issue), apparently 70% have a mild reaction of some sort on first session but on the second half it drops to 6% so 🤞🏻. Was just a little fatigued the day after with a headache. Take things to do, snacks and a cold drink and the time will pass easily. Good luck!