Feeling defeated
I was diagnosed in June 2022 RRMS I returned to work in September but had to go out again the end of January. I am have the worst headaches, fatigue,insomnia, terrible back and body aches. I work customer service in a fast paced environment I was struggling to keep up its hard to stay focused on things I struggle with my memory and being able to find my words and communication things well. I was on Zanaflex but l don’t like the side effects started having awful anxiety/ depression thoughts of hurting myself so I stopped taking it. I am now in therapy but feel I may need to leave my job I am single so I have no one to financially help me. But by lunch I would be slumped over my desk in tears. I have not been approved for disability yet I worry how I will be able to support myself if I don’t have my job. I can’t sit for long nor stand for long periods. My job was giving me an extra 15 min break each day but that is not enough. I am trying so hard it’s really frustrating 🤯
Hang in there! Sometimes I miss work but the pain and self doubt can be intense when out in public. Stress/intense stress brings on more or worsening symptoms, so don’t give up and think about self motivating things I don’t care if its small, it’s still big because this disease is unpredictable. Even if you reflect and say “I’m going through all this pain but yesterday I had a headache with it”. Today u don’t so now thinking on that gave a glimmer of appreciation or thankfulness! Our mood affects or body greatly.
Hi jamee, welcome to the group. I feel defeated every day too. I have had MS since 2000. I have chronic fatigue, nerve pain and headaches too. I find that since I have had " Rituximab infusions " my headaches gave practically disappeared and SPMS has slowed . This is an excellent page to get information from people who live with this terrible disease.