DMTs and pregnancy/breastfeeding
Hi everyone...
I'm new to the community and new to MS in general. I was diagnosed during covid and was 6 weeks pregnant at the time. Neurologist got me on Copaxone first as safe in pregnancy and for breastfeeding. Now nearly two years after giving birth and 1 year after my last MRI he's suggested moving to ocrevus or kesimpta. I'm happy with either in terms of potential side effects/how they treat MS and so on ... but I'm nervous about how things may change if I wanted to have another baby or end up breastfeeding...
The research I'm reading (that nurses have shared with me) is quite vague. I feel like everyone is being generally vague and unspecific and it's making my decision harder.
I've only had MS for 3 or so years and feel like I'm expected to be an expert.
Has anyone else had to make a similar decision/been on either of the medicines whilst pregnant/breastfeeding??
Hi 👋 I had my baby 9 months ago while I was on Tysabri as this is now deemed safe for pregnancy, just need to not have any in the last 6 weeks of pregnancy. I moved to Ocrevus in February after a high JCV count meant u couldn't continue on Tysabri. Most of the printed information about ocrevus says no pregnancy until 12 months after the last infusion but this seems to have changed. My consultant tells me that ideally falling pregnant 3 months after an infusion is deemed to be safest for baby and mum. Obviously things don't always go to plan when trying to convince but it does seem to be possible on ocrevus. My consultant say its just takes a bit of planning. I'm not sure if this is universally accepted as I think it may come down to individual consultants and their way of thinking.
@Samg276 thanks very much. Yes my consultant seemed to say both kesimpta and ocrevus are fine with similar guidance to your neurologist actually. It just got confusing as all the research isn't updated. I guess I just wish it was easier to make a decision about these things. Appreciate your input thank you.