Dizziness
I don’t have a bio and don’t really have the energy to type up my back story. (I’ll muster up the motivation to make a bio later this week lol) but I am 24, diagnosed Sep 2019 with RRMS. I had a question on dizziness. If I sit/squat, lay down or reach for things up high for too long I experience this lightheaded dizzy feeling that flushes over my body. Sometime my legs give out and I fall to the ground, most of the time I hold on to something to stabilize myself.
I saw my Neurologist today (follow up for my first dose of Mavenclad) (used to be on Tecfidera) and she told me that I should monitor my blood pressure because it sound like it could be from unusual fluctuations and had nothing to do with ms (even though I’ve never experienced this until I was diagnosed). Does anyone else know what I’m talking about, or have any suggestions?
Yes, I totally feel like this. I find if I tilt or turn my head it can trigger a fall or just feeling dizzy 🥴. It is like I have drunk alcohol 🍷. I have told clinicians but I haven’t been offered any help. I guess because I am not 80 years old and can pick myself up it isn’t viewed as a problem. I find it one of those annoying symptoms that others can’t see or understand. Super frustrating .
I’ve had that, had to be really careful going down stairs, I used to stop at the top, focus and then move. It seems to have gone now. I did tell the nurse and she said it was because I didn’t eat breakfast! I’ve never eaten breakfast and I’d get it later in the day after lunch.