Telling people not great news
So I had an appointment with my neurologist today and I have a new lesions my medulla oblongata. OK so that is shit. But then I had to go home and tell my partner which has upset him. And I will have to tell my mum and my sisters. I don't like people being worried about me, I'm pretty much ok as far this disease goes so far, my thinking is people can worry about me when it is obvious.I know I'm lucky to have people that care but it just upsets me to upset them... I don't why I'm sharing this, maybe someone understands or maybe I should be told fix up?
I'm sorry to hear about your new lesions. Are they gonna give you treatment or what is the plan? As concerns your nearest and dearest, it's not - or it shouldn't be - about them. You're the one with MS carrying the can here, they should be supporting you. If you don't think their reactions are helpful, then it might be an idea to tell them that: "it'd be really great if you could do X instead of Y" etc etc. If they're creating extra problems, then they're not helping tbqh.
I think it's human nature for those tha love us to worry. It's nice to have a support network that cares. I do like people having a sincere interest in how I'm doing or where I'm going, but probably like you, don't let it ruin your day. The only thing that REALLY bothers me is when people that are not in "the support group" are feigning concern, or "you look like you're doing well", when they really don't care and will never truly know/understand how I feel. Long story even longer, I appreciate the ones that know, see and care. I wish you the best on your journey I'm just starting on this forum.