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@Dawbs 

Last reply

Dawbs

Lost

Been reading posts on here since October and it makes me feel so much better to know people are going through the same things I am… 10 years ago whilst training for a triathlon I had several seizures over a 3 week period… When I went to my GP I got no clue as to why, the only thing they did was to inform the DVLA so I lost my driving license for 18 months causing me to lose my job… Christmas Eve 2020 I got optic neuritis in my left eye and my vision never fully returned… Since then I now have partial sight loss in my right eye… Other symptoms include inability to swallow food, trembling hands, numbness and pins an needles in my hands and arms… Some days I have loss of balance… Some days I can’t see/ focus so can’t go to work… In the last year I have been told by quite a few doctors that they think it might be MS… The brain lesions that was identified on my first brain scan back in 2020 have now deteriorated… But still no diagnosis… I am an aerospace design engineer with a young family with bills to pay and I am afraid that I will lose my livelihood… I’ve paid a lot of money which I don’t have to go private for both my eyes and Nuerology… Still no diagnosis… Feeling so lost because even my family and friends don’t get the predicament I’m in… No idea what to do…
Leeds, United Kingdom
10
@S_777
@S_777
 

Manage yr stress & any symptoms u do get try to I feel one of my errors was nt to try to manage my stress better even if it meant leaving stress situations e.g stress roles

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@Beardy
@Beardy
 

Mate, it’s total rubbish isn’t it. I’m being passed from pillar to post between doctors for a final diagnosis as well. They’ve all agreed that I have ms but I keep being told only an ms nuerologist can give offical diagnosis. So I’m being referred again to another hospital this time kings in London. Fingers crossed that will lead to an official diagnosis and treatment as I also am the main bread winner and have small child. So stressful that may lose my job and with cost of living just going up and up being on sick since May down to half pay and with two relapses so far as I’m a paramedic the ambulance service don’t want me back till they know what adjustments they need to put in place. After 23 years in the job and with all the issues these relapses have left me with terrified that I won’t be able to go back to work as I can’t feel with my fingertips so finding a vein will be difficult can use me left side due to tremors so intubation would be impossible don’t have strength to hold my self up without crutches so can’t carry a patient down stairs or drive a big yellow box really fast either still waiting on the dvla to decide if I can keep my licence and as my cognitive speed has slowed down and it’s impossible know to multitask I’ve also no idea what to do. I know this reply dosent really help you but just wanted to reach out so you know your not alone and I get it. But the main message I’ve got from this site and from replies to posts I’ve made is to try and not stress which is easy said than done. But I’m trying manage that better. If you wanna chat I’m happy for you to dm me. Race you to a diagnosis 😂

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