Tecfidera
I have been on Tec just over three weeks and third week on two tablets of 240. Last four days extreme diarrhea also nausea and stomach cramping. Spoke with MS nurse who said was probably at stomach bug. Everything I have read in the booklet and on here suggests could be a side effect which I told her. She said to come off the pills for a couple of days. Don’t have much faith in either of her answers to be honest. Still in bed feeling so poorly. If it is pills do I ride it out how long does it last and should I take something to stop going to toilet. Did ask my Nurse but no answer. If just a bug should I come off pills to see and will this put me at square one if is the meds. Just feeling low about it all. Thanks.
It sounds like a combo - I took it for 7 y - it can take a while to get used to it. I used to manage the most magnificent farts from time to time. Would have been funnier if I were 7y old. - There is no reason not to have a tummy bug - these things happen - but it will be exacerbated by the DMF (Tec), especially if you are new to it. - If it were me I'd take 1/2 dose for a week and see if things improved. It may bve unpleasant but it won't kill you. I am a believer in getting MS medicated as soon as possible and not jacking it in straight away. Am on Ocrelizumab now and have never had a side-effect 18 months on. - Do what you can cope with. Keep a note of what and when (Am surprised you haven't been asked to yet but regardless, it makes your descriptions of feelings and events much easier when you report back. Don't forget the GP as well. They know a lot. - Best
I could not tolerate Tefidera at all. It caused me to flush for 5 hours at a time. I would be beet red a d strangers would point and you could hear them say what’s wrong with her. Quite embarrassing for my husband mor than myself and it would itch and feel hot. Not for me. I have had MS for over 30 years. It was benign for about 24 of those years and now I don’t know what is happening, but these last 6 years I have been in a lot of pain. I am on my 4th neurologist just by the weird twist of fate that my last 3 retired within 6 months either to old age or different fields. Right now I fear for having MS for so long that it has progressed into Secondary Progressive MS. I don’t see my new doctor for another 5 months which I would make sooner except for this Covid -19 and I really don’t want to go out because besides MS I also have 3 other autoimmune diseases. Once you have one, as you age, sometimes, they seem to compound into a lot more especially if you don’t take care of yourself and eat properly which I didn’t when I first learned I had MS. Now we know so much more than 30 years ago. No excuse not to eat right and exercise if you can.