I’m back!
Hi 👋
I took three months away from Shift.
I was in a really dark place and needed to hide myself away. I couldn’t cope.
My MS nurse suggested that I come back here as I have no support system and I’m starting to feel mentally strong enough to be part of the community again.
Updates:
- the frozen shoulder that I started with last May? I had an injection in November and it’s helped LOADS with the pain! 🎉🎉🎉
- the situation where I lost my business of almost 15 years and all my clients dumped me when they found out that I had MA? I’ve decided to start up a new business that I can run better around my MS. It’s going to be a few years before it starts to make money but I’m super passionate about it. 🎉🎉🎉
- I just had my 1 year Star MS trial check up. I’ve been on Kesimpta for 11 months and the MRI showed no active lesions and no new ones. No changes! 🎉🎉🎉
- I’m on antidepressants and had talking therapy for my depression. It’s still a working progress but at least I’m doing about it. 🎉🎉🎉
- I’ve been ill since the 3rd of January and little old mouse me finally pushed to see a dr today. I did see a nurse so that counts right? I’m on two lots of steroids now as I have a bacterial infection on my lungs. I finally pushed for answers! 🎉🎉🎉
That’s all to say that life isn’t perfect, but I’m doing better 🎉🎉🎉
Well done
I hope that you are well enough to feel good about participating on here. Everyone needs to share their grief and share their victories! And both are equally welcome here. Big congratulations on a year of treatment and no new lesions! That is terrific. I have been on antidepressants since my diagnosis in 2005. Partly, it is to treat neuropathic pain, but also to address depression. I never looked at my depression as a “sadness” but more of a feeling of discouragement. Depression is a tool that Satan wants to use to make me drift away from God. That is my view, at least. And my job is to recognize the big D, replace my negative thoughts with more positive thoughts, and seek and use coping tools…to shrink the big D into a little tiny D. I know that “nothing can separate us from the love of God that is through Jesus Christ”. So, no matter how depression pushes me around, I know that it can never win. May I ask, was your “frozen shoulder” literally feeling COLD, or was it stuck in place? I have icy cold burning pain in my arms, hands and lower legs. So I was just curious because you used the word “frozen”. I have not found a lot of MS patients who describe an icy Cold burning sensation. Sound like you are on a good streak of handling your life issues and taking care of yourself. Glad to meet you. Happy to talk anytime.