@Cherry

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Cherry

MS & Endometriosis symptoms

Hey, I’m new to the MS community, I was only recently diagnosed (2 weeks ago) so I don’t know much about ms. I have endometriosis and experience daily pain however now I’m a little confused as to what is ms pain and what is endo pain. Does anyone else have both conditions and could perhaps shed some light. My pain is mostly in my pelvic area (that’s definitely endo) but I do get pain in my shoulders, my side/rib area, just below my sternum/upper abdomen area, pain when walking/standing/sitting for long periods. I’m just not sure what is ms and as I now need to update my ms nurse with any new symptoms or changes, I don’t know what to pay attention to. (Side note: I was diagnosed with ms after getting optical neuritis in 2020 and having a mri not because of my pain/symptoms) Thanks.

Vixen

@Vixen

Hi @Cherry, sorry to hear you're having such a range of symptoms. Yes, if you have MS it often is really difficult to separate it from other ailments and symptoms. When is your next follow up appointment, and have medications (DMDs) been discussed with you yet? Lots to take in, I know!

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Sheena0309

@Sheena0309

@cherry omg we sound like the same person! I also have both endo and MS. Have u had any treatment for the endo? I'm currently on decapeptyl injections and hrt which has been great for the pain. Speak to your Dr about it and whether you can try it alongside a DMT for your MS as it will hopefully give you an idea of what pain is what. Also do you know where abouts your endo is? That might give you an idea too x

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Cherry

@Cherry

@vixen Thank you. My next appointment with the ms nurse is in july and the neurologist in October. No medications have been discussed yet as apparently the ms hasn’t progressed very fast since my last mri (6 months in between, only one additional lesion on my brain)

Cherry

@Cherry

@Sheena0309 I’ve had several laparoscopies (endo on both ovaries, uterosacral ligaments, perineum, pod and I have adenomyosis too), pain injections and been on a million different hormones lol. I’ve cut back on most things now and im only taking gabapentin and tramadol atm. No medications for ms have been discussed yet, I see the neurologist in October.

Sheena0309

@Sheena0309

@Cherry Aww, I can't imagine the pain you're in! Since I've taken the monthly Decapeptyl injections my pains gone down from an 8 to a 3. Worth speaking to your gyno about and to check if you can have them alongside the DMD of your choice. Wish you all the luck!

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HayleyJC1988

@HayleyJC1988

I have both endometriosis and ms. Diagnosed with endo at 13 years old and ms in March this year after optical neuritis in November 2020. I too find it difficult to distinguish which is the cause of pain. Sending best wishes to you x

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Cherry

@Cherry

@Sheena0309 Thank you, I will speak to my doctors about it

Cherry

@Cherry

@HayleyJC1988 Thank you, same goes to you x