@CharlouiseXoย 

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CharlouiseXo

Before Diagnosis and Symptoms now?

Hello I'm new here ๐Ÿ‘‹๐Ÿป I'm 28 and have 3 little boys, one who I sadly lost in 2018. My youngest is 2 and oldest is 12 ๐Ÿ’™ I'm from the UK and I'm not diagnosed as of yet. Xx It started 8 weeks ago when I started falling to my left, I couldn't understand it. I just kept walking and going to the left and I left it a little bit before I got checked out. It just kept getting worse. Then I started to feel light headed. Went to A&E which they thought id had a stroke but too "young" to have one of those. They sent me home told me to rest. Went back again the next day because I still felt the same and I'm not one of these people who get seen, I'm the total opposite. I've never ever gone into A&E about myself because I don't like making a fuss! I went back, waited 10 hours to be seen. My auntie told me to ask about if I have MS and the doctor said "no you won't have MS symptoms don't just come on instantly like yours has and you'd be in so much pain when you aren't in any" I was so thankful to hear that tbh! They sent me back home and told me I'm fine. I went back a few days later again, I didnt want to but felt like I had no choice! ๐Ÿ˜ฎโ€๐Ÿ’จ waited 13 hours to be seen that day, they did actually arrange a CT scan which came back fine! And my bloods come back fine and also a urine test. All normal. Apart from a UTI I got given tablets but I couldn't take them they made me feel sick. I got sent home again. They said to come back in a few days if I feel the same for a MRI scan. Left it a few days again came back, and a lady at reception told me that they couldn't arrange a MRI scan for me because you have to be a inpatient to have one so was unsure why the doctor said that to me. Send me home once again. ๐Ÿ˜ฅ just did the usual hand grips and checked reflexes and my walking. Still going to the left but wobbling all over the place at this point. Sent me home. Next day I felt awful once again, walking like I'm drunk now not just falling to the left. Light headedness, pressure feeling in my head, left arm feeling heavy and dead and as was my left leg. Called 111 and they sent a ambulance out for me, the 2 blokes were so lovely. Wrote loads of information down for the doctor to see. I got a bed in A&E then got sent to the waiting a&e once again. Sent me home again no tests done! ๐Ÿ˜ฅ Next day, went to my partners sisters BBQ, was there 10 minutes in the sun. My little boy gave me some pizza I ate it and then realised the whole left side of my mouth went numb!!! That's when the panic started!!! I was so so scared my throat would close up and then I'd be a gonna! ๐Ÿ˜ฅ I got my partner to take me to a&e and finallllllyyyy after 8 hours of waiting they admitted me! As much as I didnt want to stay in, I'm so glad I did. CT scan done the next day again, came back clear. Had to wait another week in hospital for the MRI scan, which showed 2 leisons on the brain and then came the devastating news. I may have MS and they were so confident I have got it. They held off with steroids for another week cause they wanted to get me to have another MRI with contrast but it was taking too long so they gave me steroids on my 2nd week in hospital. Gave me a lumbar puncture before I went home and haven't got the results back yet, its been 3 weeks and I'm terrified to call and ask as I really don't want to know ๐Ÿฅบ I'm terrified. Xx Fast forward now, My walking has improved abit, I'm still wobbling all over the place and limping. Pressure in my head has gone, Double vision I had in hospital has completely gone, Vertigo has gone, Numbness in my mouth is still here and it's been 6 weeks since I got it. Also spread to my leg, my bum cheeks, my left side of my back, left side of face and scalp. Is it normal to have more symptoms? Like yesterday I had the pressure in my head again, headaches, sensory overload with my hearing, now today I've woken up with my ears being muffled, I've had the MS hug since being home, pins and needles, hip pain. I'm just so scared I've got that progressive type. I am absolutely terrified of everything right now. As much as I'm trying to stay positive and strong, I'm so upset and so scared all of the time. I'm so sorry for the long post, but I hope you'll read to the end because I feel so alone right now. Partners just carrying on as normal and thinks I'm fine. I'm not fine :( I'm struggling mentally. Thank you all xxxx
@Martinguy

Hi! My goodness! The frustration each and every time u were sent home, I canโ€™t even imagine. I was 16 when I was diagnosed, weeks of tests, lost the vision out my left eye. To answer your question itโ€™s common to have multiple issues at the same time, with the use of corticosteroids those expedite the relapse and can make things close to feeling normal. Support is the best thing.

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@Martinguy

Be strong through it all amiga! ๐Ÿ’ช๐Ÿป

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