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@Aimeepoppet 

Last reply

Aimeepoppet

Newly diagnosed

Hey So I have been diagnosed with MS this week. All came as a bit of a shock and I think I'm still in denial. Had optic neuritis in the right eye in 2020 and then a week ago my left eye lost some vision, not badly, but was told that these 2 episodes alongside an MRI which shows inflammation mean I have MS. This MRI was actually done in November and it was never followed up with me so I stupidly thought all was fine. The word inflammation scares me, but I've been reassured it doesn't mean 'inflamed' as in swelling? It's more to do with the damaged areas I think? In all honesty I have been told so much this week I don't exactly know what's going on or what's happening to me. I've been given some steroids, 500mg per day of methylprednisolone... I feel worse taking them. My head feels so tight, my chest is tight and I feel so sick and tired. Is this normal? I feel like I just want my life back to how it was 2 weeks ago. Amy advice much appreciated. I joined this site as I don't really want to get deep into the Google searches and need real people to confide in. Thanks in advance xxx
2
@Wilf
@Wilf
 

They need 2 separate episodes and the MRI to diagnose MS so they couldn’t have confirmed it in November. Steroids can help but you should tell them if it’s making it worse. At least now you’re diagnosed they can help you and will hopefully suggest treatment to reduce future relapses. Hope you feel better soon x

@Drago
@Drago
 

I say this In the nicest possible way, get on to your Dr's or a new dr or the eye hospital for real treatment a DMT/DMD (disease Modifying Treament/Drug) this is the only thing that can stop/slow it. Steroids cant fix damage and only way to stop damage is to prevent it before it happens with a DMT. I have optic nerve damage in both eyes from MS and only thing that as calmed and slowed it for myself is a DMT I wish you the best i truley do.