Hi all, I’m Agathe, originally from France but living in Germany. I have been having symptoms since 2017 that at first drs explained through “side effects” of heavy heart treatments I needed at the time. I since then had 2 heart surgeries and symptoms came back even tho my heart is healthy now and I take no treatment anymore. I’ve been told in 2020 “it might be MS” and since then continue to have periods of time with new symptoms and difficulties. In may this year I was hospitalised for dysphagia, I am unable to swallow properly since. I was hospitalised in 2 hospitals which focused on looking for gastro issues even when I repeatedly mentioned the ms suspicion of my french neuro and threw me away saying I’m stressed even tho they couldn’t explain the contrast X-ray showing the food not moving down my oesophagus. It’s been 5 months I eat nearly exclusively hypercaloric drinks and my life is hard, I struggle to use my left hand, pins and needles, pains like knife, vision issues, having to push like crazy to pee, my neuro couldn’t find reflexes in my left side and I turned positive to the Hoffman test which I was negative to before. However I’m still asked to wait until November for re hospitalisation and lumbar puncture. It’s since a week now that I struggle to think and speak properly, it’s as if I can’t remember the names of people living with me. I feel extremely dizzy and tired. I’m thinking of going directly to the emergency room to finish with that, what would you do ? I’m so tired of not being listened to… I’m scared because it’s been months I can’t swallow food and I’m scared it will stay like this. #diagnosis #dysphagia #symptoms