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Relapse 😞

Unfortunately I am having my first relapse in 2.5 years and I am still on tysabri (going into ocrevus in a few weeks) I feel angry as I was kind of in denial as everything was going to so great. My father passed away in May and I thought since I didn’t have a relapse then I’d be safe but here it is! It’s started a few weeks ago. My ms symptoms never just appear, they are like a slow burner and get worse over weeks and I think I’ve hit the peak now. Complete numb left foot and leg and half my bum. I know what it is but it’s to distressing, it’s so uncomfortable and I can’t sleep. It’s impacting every area of my life right now as I’m so terrified it won’t let up at all. I just need someone to talk too.

It sounds like things have been extremely difficult for you lately. It's understandable to feel the way you do, with your relapse going on at the moment. Sometimes it just feels overwhelming and feels like you're drowning in a situation you can't control. When things happen to me, I get angry and annoyed. I feel frustrated and upset that it's happening. I particularly get annoyed when I think of all the things I used to do. I find it's good to talk to whoever you trust (whether it's friends, family or your medical team), that way you don't feel so isolated. I also find breaking things/ difficulties down into bitesize chunks, helps me deal with them more effectively and not feel so overwhelmed. That way I have a series of achievable things, that I can do, rather than feel swamped by a huge thing that I can't. The most important thing to remember, is that you're not alone. Feel free to express yourself here and I'm sure others and myself will do what we can to listen.