Last reply 2 months ago
Work.

I cannot get a hold of my MS nurse, so I wonder if anyone can help steer me in the right direction.

I have RRMS, 7 years in, I have never used DMD’s. My symptoms are mainly sensory, weakness and fatigue. I work as a hospital based cancer nurse and I have no idea if I should continue to do so in the current climate.

I’m mainly office based, with a team of 7 other people but we work across the surgery and oncology depts..so social distancing becomes albeit impossible.

My work have asked me for clarity as to whether I should be at work or not.

I have extreme anxiety, and I’m very tearful at the moment, brought on, I think by the situation we’re all in – another new thing is that my legs are heavy and feel jelly like at the same time – they feel like they are shaking on the inside but have kead boits on and I have increased nerve pain especially on my left thigh,like prickling, oh and an itchy crawly feeling on my shins. I have left sided arm and shoulder pain which is not that new for me, and my fatigue and brain fog are in top notch condition just now, unfortunately…

Is anyone else in a similar position that could offer me any advice,please??

TIA, Deborah

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supermum1983
2 months ago

Id stay at home. Self isolate


stumbler
2 months ago

@irishangel111 , you should check out some of the links provided by @dominic in his daliy Covid-19 updates.

My understanding is that you are no more at risk than anyone else, so normal precautions that nurses normally follow.

Your present level of stress/anxiety is probably responsible for your MS symptoms “grumbling”. Now you know where you stand, hopefully these levels will now decrease.

Just take care and know that you, and your colleagues, are very much appreciated for what you do.


irishangel111
2 months ago

Thank you both!

I cannot find anything posted by @dominic.

I have to say I find this website extremely difficult to navigate, which is why I’m not here every often. But I’m grateful for the advice. 🙂


bosh
2 months ago

@irishangel111. That should be @dominics. Fount of all Covid19 wisdom.


irishangel111
2 months ago

Thank you!!


dominics
2 months ago

@irishangel111 I am reliably informed that a new site is coming. Needs testing as grew past the ability of WordPress to accommodate it. @amy is in the loop. Not sure how long this is all taking.

Now is the time for it as I agree, the site is not up to supporting the calls on it from all the users.

#crossedfingers


irishangel111
2 months ago

That is great news @dominics! Thanks!

I’m not very tech savvy and I just get frustrated on here!!


stumbler
2 months ago

dominics
2 months ago

Go to http://www.ms-selfie.com first. You can answer any questions that the (very comprehensive) site does not cover.


dominics
2 months ago

Thank you @stumbler

I am using it to get digs in at the useless buffoon that is the titular leader. Thank god he has a fair few experts that he listens to.


emzxx
2 months ago

@irishangel111 have you contacted occuptional health for advice? I got there number yesterday as I work at the hospital waiting to hear back from them x


irishangel111
2 months ago

It goes straight to voice mail, that says not to leave a message.. I’m exasperated!!


hotfoot
2 months ago

I have had virtually the same symptoms for approx 20 years, my nurse says DMD aren’t suitable for my our type of ms, it is used for people with remitting disease. My work involved precise life threatening maintenance on all sorts of heavy engineering, including at great heights. I stuck this work out for about 4 years after diagnosis, mostly because of unrelenting pain in my lower legs and feet for which I eventually ended up taking Lyrica or Pregablin which only ‘takes the edge off’ my pain. When this unexplicable torture started, my wife would cover both my feet with cloths she had left in my freezer, the weight of my bed sheets would cause too much pain. I do manage to see this nurse only when I request an audience which isn’t very often, haven’t tried recently though. You are doing a valuable job, but don’t we all, stick it out for as long as you can to help you mentally, but don’t go further than you feel, because I know how hard it is to battle on keeping the show on the road. It is not your fault, try not to include guilt into your decision!


emzxx
2 months ago

I have got the number for Derby/chesterfield and sheffield occuptional health and they answered this morning , even if it is just to give you some advice x

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