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@shynini 

Last reply

shynini

What do you think about copaxone?

Hi everybody, my name is Martina. I am 23years old and I had this "very nice disease" from 15. I was ok till the end of the last summer. It started with cramps, dizziness, problems with hands and walking. I really did not feel like me in this period of my life. My doctor told me, that my MS is worse, but not so much...she thinks that this symptoms are just in my head and I would like to trust her! However, when I feel better and in a great mood, they are still there for example - I can walk, but I do not feel my left leg sometimes or my right hand is shaking sometimes so much, that I can hold cup in it. And I have to control myself whole day at work, because I am horrible tired all the time:( I am totally crazy from it! I have been taking copaxone for the second year and maybe I think that I should change it on something else, because my problems started after a few months of taking it. But maybe, I am wrong...how you people fight with your first symptoms? can you give me some advice...thank you:))
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@aardvark
@aardvark
 

Hi <a href='https://shift.ms/community/people/shynini/' rel='nofollow'>@shynini</a> I can imagine that there's nothing worse than being told that symptoms you are having to deal with are in your head! As you say, on a good day they're still there. It sounds as if your MS is similar to mine. For me, the biggest problem is fatigue which is invisible, but it effects me every day. Fortunately for me I work from home, so if I feel tired in the middle of the day I lie down for an hour... I feel very sorry for people who have to keep going! I was lucky in that I was relapse free when I started on DMDs and I have been since. As far as Copaxone is concerned, I have felt better since I have been taking it. As <a href='https://shift.ms/community/people/bukowski/' rel='nofollow'>@bukowski</a> says, "taking something that is shown to reduce relapses is quite empowering". Copaxone doesn't actually make you better (as you know) but I definitely feel better as I'm doing something! Get back in your corner MS. Bad MS! At the end of the day, only your Neuro can advise if changing DMDs will be a good idea. I know that the Beta Interferons can have more pronounced side effects than Copaxone like flu symptoms. I wouldn't want those as getting through my working day is the most important thing for me. I hope you get the answers you want soon Mark :)

@shynini
@shynini
 

thanx for your answers:)) I do not know, what I will do next...However, I think the same like you Mark - beta interferons are not better way. So, I will have to find my own way, how to fight with it = like bukowski said. But till that time, MS sucks me a lot:D And I really want to be in period like some people are - enjoying their lifes no matter on consequences!