Wah! Too much
I’m just finding things really really tough lately. My latest immune suppressing treatment has played havoc with my body. My stomach is so unsettled I can’t eat properly. I keep getting skin infections because my immune system is so low.
I have an allergy to the cold on top of MS which is crazy at the moment and setting of MS hug and cramps in my body. I’m battling with my neuro and had to change medical teams, I’m battling with my treatment as it hurting while it’s helping, I’m battling with my body because the conditions are flooring me, I’m battling with the government to be heard, I’m fighting for my son (another long horrible story - his father doesn’t help as he found drugs and violence after I left him many years ago before my diagnosis), I’m fighting for people to believe my conditions because they’re invisible ... and I’m so tired and so sick of fighting!
It feels every day there’s a new symptom I’m dealing with, when no one even believes the ones I’ve already got and haven’t even come to terms with myself. The pressures in my life are insane, and I’m doing it all by myself and it all feels impossible.
This condition is a torture sentence... so hard... and so many people refuse to acknowledge it. The fatigue is almost essential to help you fall asleep with exhaustion so you don’t dwell in the hopelessness.
I’m sorry - but today it’s really damn hard. And no one seems to understand 😖
@josie_causer , you can't fight all these battles at the same time, so you need to try and resolve one (or more) so that you can concentrate on the more difficult problems. Ocrevus is a good treatment, but will leave you immuno-compromised, meaning that you're wide open to all the bugs and germs. Your young man (your son) will potentially be bringing all these nasties home with him - it's what young lads do! So, you must ensure that you keep yourself hygienically clean, so make anti-bacterial hand gel your friend. I fear that fighting for your son will be the most difficult battle, so call on any help available to you, e.g. Citizens Advice, Women's abuse charities, etc.. How are you fighting the government? As for other people, they are never going to understand it. They can't see it, so they can't acknowledge its existence. Like I say, one battle at a time. Hopefully, you can get your health in better shape and this will allow you to be in better shape to fight the other battles. Good luck and shout if you feel we can provide further advice.
Thank you 💜 was just having a seriously low moment. The fight for my son is done, I have him full time... it’s just the forever battle with his Dad’s family and dealing with their ignorance. It’s just so frustrating and unhelpful when they are so unhelpful in a situation where they really ought to be helping their Grandson/son... not to worry! I’m fighting the government because the system here is a joke. It’s a very long story but I’m hoping to get some results in the next two weeks. It’s just exhausting the chain of people who are supposed to “care” but who really just want to do their job and go home and couldn’t give two hoots who you are, what your story is and what your need. Often, more thought and effort goes more to marketing an idea in this world than the actual running of it. It’s all about image - not substance. The disconnection in the world gets me down, but instead of lamenting I do intend to try and combat it in my own little way. Look after each other folks - it’s all about people, People. Connection is everything and I get deflated when I’m faced with too many examples of the world losing sight of what’s really important. Thanks for listening and replying - it’s lovely when you’re not invisible 💜