Last reply 1 week ago
The neverending story

Hi everyone πŸ™‚

I am getting close to an appointment with a general specialist physician to get the ball rolling for testing to get to the bottom of a big range of symptoms. Some I have been experiencing for a number of years, others have shown their face over the last few months. Due to Covid-19 it has been a long wait since I went to my GP concerned about what I was experiencing.

What prompted me to go was one symptom in particular: an intense electric shock sensation in my tongue. I have had tests over the last 2 or so years for a few symptoms, including joint pain, tingling in my hands and chronic sinus discomfort or pain. All tests have come back with an everything is normal result, so I have had a tendency to just carry on with life and put up with it. However, the tongue sensation made me think, ‘Okay, this is definitely not normal’ and realised I needed to get it checked out. At the time of my GP appointment tingling in my hands was more intense than ‘normal’ and I had a big list of different things I’d been experiencing in general. I wasn’t going to be able to get in to a Neurologist til October.

After my appointment with the GP over the the next week or so my symptoms intensified and new ones appeared. Tingling started in my arms, feet and legs, I experienced sharp pin prick and burning sensations, I was getting jerking or spasm type feelings, and tingling in my face at times. Other, ‘normal’ things for me like noise sensitivity were more intense and ai had moments of skin sensitivity that made me jump as well. It was all really overhwelming so I had phone consult and said was there way to see someone sooner. I wanted to get an MRI and whatever tests needed to be done underway. I had blood work done in the meantime and now here I am, 6 days away from my appointment.

Thankfully, all the symptoms have calmed down but some are still there to varying degrees each day. I suspect MS, but know it could be something else. Sometimes I still think maybe it’s nothing or that I am imagining it, but then the electric tongue sensation happens again and I remember that these things aren’t normal.

I joined another site a while back, but recently discovered this one. I am so glad to read about people’s experiences and not feel so alone.

Does anyone else get the electric shock tongue sensation? It really is so bizarre! Looking forward to connecting. Thanks for having me 😊

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2 weeks ago

Hi πŸ‘‹,
For me, having the diagnosis was a (frightening) relief, as it confirmed what I thought and made sense to my symptoms

2 weeks ago

Thanks for the reply πŸ™‚
I can understand that kind of relief, for sure. I have been waiting so long just for an appointment I have been mentally preparing myself a bit, but also know that I cannot really prepare myself for how I will actually feel! I know I will be incredibly frustrated if I don’t get any answers again.

Have been experiencing lots of spasms and tingling today.

It would be good to be able to explain to my students what on earth is happening to their teacher when my symptoms are worse and they notice. They were noticing in those weeks when it was really intense. My brain fog was much worse and my speech was affected and my cognition and motor function sort of went a bit haywire. When I wrote my initial post I forgot about the speech and cognitive stuff I had going on at that time. It was scary really.

What symptoms did you have prior to diagnosis??

2 weeks ago

It was my walking and balance (oh and forgetfulness) that had others questioning my sobriety and when you are on an oil platform with water all around you that isn’t so good

2 weeks ago

Hi @sarah_williams , neurological problems can give a variety of different symptoms/locations, dependent on which part of your Central Nervous System (CNS) is affected.

I’m not surprised that your symptoms have been “flaring” recently. It’s probably been causing you a lot of stress. And stress can have a derogatory affect on our CNS.

Good luck with the upcoming appointment. Do let us know how it goes. πŸ˜‰

1 week ago

@stumbler thanks, will do!

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